close call

Yes we are home. It's really great to be home; however, I think I'm getting less sleep and working more now that I'm nurse Shannon. The home health nurse came by last night and trained Craig as well. He tolerated the training very well.

Craig and I both woke up to do the 1:30 am IV dose. We managed pretty well; however, Dalton was running a temperature of 101.3. One tenth degree more and we were to head to the ER. After a cold towel on the head and some tylenol, the temperature started to go down.

Craig seems to function better than I on less sleep. He got up at the 7:30am dose and did it all by himself ( with a few verbal cues). Boy am I tired today but hopefully I'll start functioning better on little sleep. 1 day down, 27 more to go.

Here's what it's like.... 7am give Dalton benedryl, 7:30 clean central line with alcohol wipe, hook up sodium chloride flush, unclamp central line, flush, clamp, prime IV bulb by unclamping then clamp, hook up to central line, unclamp both line and IV bulb...wait 2 hours. 9:30am clamp and unhook Iv bulb, wipe line with alcohol wipe, hook up sodium chloride flush, unclamp, flush, clamp, hook up heparin flush, unclamp flush, clamp. finished
in 3 1/2 hours give benedryl and repeat. ( 1 pm) then again at 7pm and again at 1am. Not a lot of time to sleep.
Anyone want that 1 am shift?

Dalton wanted to visit his friends up at school. We stopped by real quick before our 1 pm IV dose. He was thrilled to see everyone and the hugs were in abundance. The kids in his class gave him high fives and clapped for him. He was glad to be at school. We even stopped in to see his friends in the cafeteria before heading home.

Hopefully no close calls tonight. He's been running a temperature again today but we're going to try an adhere to a Ibprofen-tylenol regimin to try and keep the temps to a minimum. If we can't, back to the ER we go.